The last few days have been up and down for Miss Londyn. 

After such a good week last week where she was putting on weight & we were able to reduce the hi-flo to 3L with talk of taking it off altogether because of how well she was doing, this weekend has been a little different.

She has lost a little bit of weight (only 10g; but any weight loss is taken seriously in prems) and she’s had some desats where her heart rate has dropped; and on occasion she’s stopped breathing for a few seconds. These are apparently all normal things for a baby of this age, but very unsettling and nerve wracking for us. If she doesn’t have enough help with breathing until her lungs are ready to do it on their own, she uses too much energy on breathing and not on growing.

Today they turned her hi-flo back up to 6L in the hope that this will allow her to use less energy on breathing and focus on resting and growing. This will be closely monitored and if her breathing doesn’t improve, she will have to go back on CPAP and have some oxygen assistance as well. They’ll also check for any infections or problems with her lungs if needed.

Within a few hours of the increased air through the hi-flo; she is a lot more settled and her breathing has become less of a struggle. We are hoping that this is enough and she will stabilize more over night and allow her some time to rest.

Apart from that, there is really no change. She continues to tolerate increased feeds which is always a positive. We have started to give her a dummy (even though I hate them!) just while she is having her feeds. This encourages her sucking reflex and the connection between sucking and her belly getting full. She has taken to this like a duck to water and sucks away on the dummy like a pro! 

So for now, we just have to sit tight and trust the Drs and not rush her progress while her little body continues to learn to live on the outside.

As always, thanks for all the love and support at this very challenging time for us.

Much love

❤️

Kasey & Dan